Marfan Syndrome Clinic

Marfan syndrome, a condition of the connective tissue, displays itself differently in different people. Since connective tissue is everywhere in the body, many body systems can be affected. Some children may be mildly affected by it while others may have severe conditions as a result. The key for you and your child to live with this disorder is to obtain appropriate medical care, accurate information and social support.

At Loyola University Health System and the Ronald McDonald® Children’s Hospital of Loyola University Medical Center, you'll find a comprehensive clinic for the diagnosis and treatment of symptoms related to Marfan syndrome. This multidisciplinary clinic trims the time patients have to wait for treatment after being diagnosed with the inherited disorder.

The clinic features a full range of outpatient services provided by physicians and other health-care professionals at a single location, Loyola’s Oakbrook Terrace Medical Center. A professional registered nurse coordinates outpatient and inpatient care with the appropriate physicians. The team of Loyola specialists dedicated to the Marfan syndrome clinic includes pediatric cardiologists, cardiovascular surgeons, ophthalmologists, otolaryngologists, orthopaedic surgeons and geneticists.

Services available for children (and adults) at the Oakbrook Terrace Medical Center include:

• Genetic analysis to make a diagnosis
• Cardiology to detect and monitor tearing or weakening of the aorta and problems with heart valves
• Cardiovascular surgery to correct problems with the aorta and heart valves
• Ophthalmology to detect, monitor and correct vision problems related to Marfan syndrome
• Orthopaedics to monitor changes in the spine, chest and skeletal system that could affect the development of the heart, lungs and other internal organs
• Otolaryngology to detect, monitor and treat Marfan-related disorders of the ear, nose, throat, and the head and neck.

Locations and Contacts
Loyola Center for Children's Health at Oakbrook Terrace map

To schedule an appointment with your Loyola pediatrician or pediatric specialist, call (877) 216-KIDS.